Recognising Deafblindness: A Distinct Disability Requiring Inclusion and Support.
Deafblindness is a distinct disability resulting from a combination of hearing and vision impairments. 27 June is observed as the “International Day of Deafblindness,” a UN observance. It aims at raising awareness of the challenges faced by people living with combined hearing and vision loss. The date marks Helen Kelle’s birth anniversary. 0.2% of the world’s population lives with severe deafblindness, and India has ~5.5 lakh people of them. As populations age, the number of people experiencing age-related deafblindness is expected to increase, and it is slightly more common among women than men. Many deafblind individuals use specialised communication methods. Advances in digital technology are making information and communication increasingly accessible. Gene therapy research, stem cell treatments, and precision medicine approaches offer hope for future therapeutic interventions. The observation is about ensuring that every individual has the opportunity to learn, communicate, work, and thrive.Â
The Only Thing Worse Than Being Blind Is Having Sight But No Vision.
Helen Keller
Deafblindness is a distinct disability resulting from a combination of hearing and vision impairments. A person does not have to be completely blind and completely deaf to be considered deafblind. The severity of deafblindness varies widely. 27 June is observed as the “International Day of Deafblindness”. In 2021, the UN proclaimed the observation as a unique disability that requires specific support and services. The observation aims at raising awareness of the challenges faced by people living with combined hearing and vision loss. The date marks the birth anniversary of Helen Keller, one of the world’s most renowned deafblind individuals. Despite losing both sight and hearing at a young age, Keller became an author, educator, and advocate for people with disabilities. Her life continues to inspire millions around the world.
Beyond Sight and Sound Lies a World of Determination, Resilience, And Possibility.
WHO data indicate that nearly 1 in 4 people worldwide live with some form of vision impairment, and 1 in 5 experience some degree of hearing loss. The concept of deafblindness as a distinct disability is relatively recent. For many years, people were classified separately as blind or deaf. During the late 20th century, disability organisations and researchers increasingly recognised that the combined loss of hearing and vision. ~0.2% of the world’s population lives with severe deafblindness. An additional 2% of the population experiences milder forms of combined hearing and vision loss that can significantly affect daily life. Together, these account for ~16 crore people. It is estimated that India has ~5.5 lakh people with Deafblindness. Experts believe the true number may be higher due to underdiagnosis and limited data collection.
As populations age, the number of people experiencing age-related deafblindness is expected to increase. Research shows that prevalence rises sharply among people aged 75 and older. Available research suggests that deafblindness is generally slightly more common among women than men, particularly in older age groups.
The Ear of The Ear, The Eye of The Eye. True Knowledge Arises
Not Merely Through Sight and Hearing But Through Deeper Awareness (Jnana).
Kena Upanishad
Deafblindness results from a complex variety of genetic, congenital, acquired, and age-related factors. Acquired deafblindness is more common than congenital Deafblindness. More than 70 causes of deafblindness are identified. Some forms, particularly those caused by genetic disorders such as Usher syndrome, are the most common condition (~50% hereditary) that affects both hearing and vision.
Several risk factors increase the likelihood of deafblindness. Advanced maternal age, family history of genetic conditions, consanguineous marriages (marriage between close relatives), and certain ethnic backgrounds may increase genetic risks for some conditions. Premature birth significantly increases the risk of deafblindness.
Many deafblind individuals use specialised communication methods. Advances in digital technology are making information and communication increasingly accessible. Smartphones, wearable devices, artificial intelligence, and assistive technologies now help many deafblind individuals navigate daily life more independently.
Gene therapy research, stem cell treatments, and precision medicine approaches offer hope for future therapeutic interventions. Understanding the molecular basis of various forms of deafblindness is leading to more targeted treatment approaches and better prognostic information for families and individuals affected by these conditions.
“The International Day of Deafblindness” reminds us that inclusion is not merely about removing physical barriers; it is about ensuring that every individual has the opportunity to learn, communicate, work, and thrive.
The True Measure of Any Society Can Be Found In How It Treats Its Most Vulnerable Members.
Mahatma Gandhi
Toon: Reema
Logs: Sai Baba
ToonLogs
